Resources
National Patient Advocate Foundation (NPAF)
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Website: www.npaf.org
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Offers educational materials, webinars, and advocacy training to help families navigate healthcare systems and advocate for their loved ones.
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Family Caregiver Alliance (FCA)
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Website: www.caregiver.org
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Provides guidance on advocacy, care planning, and legal considerations, as well as online support groups.
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The Care Partner Project
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Website: www.thecarepartnerproject.org
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Offers free toolkits and checklists to help family caregivers advocate for their loved ones in hospitals, rehab centers, and at home.
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AARP Caregiving Resource Center
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Website: www.aarp.org/caregiving
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Provides a comprehensive guide on how to advocate for older adults, covering topics like medication management, financial planning, and legal matters.
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The National Institute on Aging (NIA)
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Website: www.nia.nih.gov
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Offers resources on advocating for seniors in healthcare settings and managing chronic conditions.
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Cal Health Find (California Department of Public Health - CDPH)
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Website: www.cdph.ca.gov
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What it offers:
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Licensing and certification information for skilled nursing facilities.
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Complaint history and inspection reports for facilities in California.
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American Parkinson Disease Association (APDA)
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Website: www.apdaparkinson.org
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Provides educational materials, online and in-person support groups, and financial aid programs.
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American Diabetes Association (ADA)
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Website: www.diabetes.org
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Resources:
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Diabetes Advocacy Hub – Information on healthcare rights, policy changes, and how to advocate for better care.
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Know Your Rights – A guide to advocating in schools, workplaces, and healthcare settings.
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ALS Association
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Website: www.als.org
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Resources:
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Educational materials on ALS management.
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Care planning guides and support for families.
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Local ALS chapters providing in-person support and services.
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ALS helpline: 1-800-782-4747
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Alzheimer’s Association
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Website: www.alz.org
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Resources:
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Educational materials on dementia types, symptoms, and treatments.
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24/7 helpline (1-800-272-3900) for support and guidance.
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Online and in-person educational programs for caregivers and families.
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Care planning resources to advocate for quality care.
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