Resources

National Patient Advocate Foundation (NPAF)

- Website: www.npaf.org
- Offers educational materials, webinars, and advocacy training to help families navigate healthcare systems and advocate for their loved ones.

Family Caregiver Alliance (FCA)

- Website: www.caregiver.org
- Provides guidance on advocacy, care planning, and legal considerations, as well as online support groups.

The Care Partner Project

- Website: www.thecarepartnerproject.org
- Offers free toolkits and checklists to help family caregivers advocate for their loved ones in hospitals, rehab centers, and at home.

AARP Caregiving Resource Center

- Website: www.aarp.org/caregiving
- Provides a comprehensive guide on how to advocate for older adults, covering topics like medication management, financial planning, and legal matters.

The National Institute on Aging (NIA)

- Website: www.nia.nih.gov
- Offers resources on advocating for seniors in healthcare settings and managing chronic conditions.

Cal Health Find (California Department of Public Health - CDPH)

- Website: www.cdph.ca.gov
- What it offers:
- Licensing and certification information for skilled nursing facilities.
- Complaint history and inspection reports for facilities in California.

American Parkinson Disease Association (APDA)

- Website: www.apdaparkinson.org
- Provides educational materials, online and in-person support groups, and financial aid programs.

American Diabetes Association (ADA)

- Website: www.diabetes.org
- Resources:
- Diabetes Advocacy Hub – Information on healthcare rights, policy changes, and how to advocate for better care.
- Know Your Rights – A guide to advocating in schools, workplaces, and healthcare settings.

ALS Association

Alzheimer’s Association

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